Thurs, 8.7 - More Improvement

Mom did not sleep that well overnight due to a few things including some burn in her eyes, but she did wake up with 1.3 WBC. That's a continued improvement that has everyone positive on this round.

Ganguly and I had what could be described as an 'odd' conversation today. I should preface this comment by saying today's his last day for a while... But basically we've been talking daily regarding Mom's health. So we're talking and it was like pulling teeth to get actual updates. In the end, it was positive with work to do. The reason I say it was odd is because he said he was leaving, but doctors would be less likely to speak with me daily b/c she's doing well. I guess that's a good problem to have? I do understand where they're coming from, and having been in some pretty dire straits I more than respect it. Just seemed odd.

First, he said that she could get out in as quick as 1.5 weeks or so. He really feels like she's on the up-and-up so should be able to get home. He (as well as the Physical Therapist) stated she'll still very weak at home, requiring 24 x 7 attention in a very sanitary environment.

I had to ask though - what about the transplant? Initially it was 3 months, but the transplant coordinator said that was before we found a sibling match. He said it would take approximately 6 weeks before she was ready for it. By my calculations, she'll start the transplant process in early to mid-October.

He proceeded to tell me more about the chemotherapy. During this initial round of chemo, she had what he described as a 5 out of 10 in terms of intensity. The next round, immediately prior to the transplant, will be a 10. Needless to say that's a lot. We'll have a clear idea of when it'll happen after the bone marrow biopsy on Monday. Everyone hope and pray that we do not need to revisit the 'induction' phase as a result of leukemia cells still being existent.

The steroids she's been on are more than having an impact. Luckily they're transitioning her off b/c the comedy of her being on them and healthier while dealing with various doctors is contagious. She knows the impact they're having, but has fun with them. Or at least she's having fun. An eye doctor came in today who she was a little annoyed with / mocking. Well he proceeded to dilate her eyes. Once she realized it, she decided to mess with him a bit - including faking sleep while he was there so he couldn't analyze her eyes. I'd ordinarily be a little disappointed, but I have a feeling Mom knows what she's doing and as Mari said - I'd hate to be a pneumonia cell right now!

She did have some applesauce and beef broth today with the hope being she could get the feeding tube out. She's more than ready, and wants that damn thing out as quickly as possible. Momentum is on her side.

She also walked around a bit, working out her legs and lungs. They did still say she'll require regular, if not daily, PT when she gets home. We're anxiously preparing the house for this, and will let everyone know when visitors are ideal.

Thanks again everyone and keep the faith!

Conor