Recovering at home

Life out of the hospital is nice in spite of the long hours at the clinic. Last night I slept straight through til 6 this morning without waking up....or being woke up. The bed here is better and nobody cares what my blood pressure is at midnight.

I am still at Mom & Dad's house because turns out there is more to do at my house before I can live there. The bathroom remodel is finished but the vents needs to be cleaned again. Then the very old carpet in the basement needs to come out, and the vents cleaned after that. And of course the house has to be cleaned again after all this other commotion. But we have a plan so it will get finished.

Medically the plan is to ride out the next 30 days using the time to get ready for a transplant. I'll visit the clinic daily for the anti-fungal drugs. Sometime in the next week or so I will start a mild chemo-therapy to prevent the recurrence of leukemia, and then be ready for a transplant.

I feel pretty good. Much better than when I went in the hospital last week. I don't have a lot of energy but I expect that will come over the next few days. I'd like to wake up and think "today I want to get this and this done." Right now I just wake up and think "today I have to eat 1800 calories and 90 g. of protein."

Eating is easier when I'm not upchucking. Plenty of meat for protein, and at least one protein shake to get close to the 90. My first goal is to stop losing, then start gaining.

Feeling better has improved my confidence too. I believe I can recover from all these things...pneumonia, leukemia, or whatever other infection gets thrown my way. I can't do it alone; I need my friends and family and my faith. But eventually I'll be on the outside again, living a new life.

Cathi